One less chemo treatment to go!

(Note to readers: Sometimes I post on the blog, too. If you’re looking for more of my posts, they can be found under the category “Stine Thoughts” on the list to the right.)

I’m happy to report that Brian made it out of his first chemotherapy treatment yesterday afternoon, and so far, it’s not as bad as we thought it was going to be! We have been told that his side-effects will get worse over the next few hours and days as the medication he was given through his IV wear off, and the next few days should be interesting to watch. The entire treatment took about three hours, but the nurse told us it will go faster once he has a chest IV port, and we get used to the routine.

The day started with us heading out on a few errands near the Group Health in Seattle, and then we arrived at the hospital a little early. That gave us time to head to the pharmacy to pick up the medication he will need today, and then we had a light lunch.

As we got closer to the treatment check-in time, Brian got more and more nervous.

I think he was seriously considering making a run for it in this picture.

"Maybe if I just sit here quiet and still, no one will make me actually go through with this." - Brian

Once we arrived at the “Chemotherapy Infusion Clinic”, a fantastic nurse with a New Zealand accent checked Brian in, gave us a tour, and started the process. Because Brian does not yet have a chest port (due to his apparent hemophiliac tenancies), the nurse started an IV in his hand, and we were off to the races!

After 5 minutes, he still has his hair. Win!

Cancer Patient? Or... um... cancer patient?

After 5 minutes of chemo, he still had his hair! Bonus!

We heard from several people who have been through this before that it is important he stay hydrated during the chemo treatment to flush his system as quickly as possible after treatment. Brian took this information to heart.

This is a photo for the "Health Matters" employee newsletter!

All of that hydration did as nature intended, and he ended up using the restroom facilities several times during the three hours we were there. This was a little awkward, because he had to roll a large cart of IV’s and equipment along with him as he went to the bathroom.

The fluid in the IV's runs right through him.

The fluid in the IV's runs right through him.

To start, they gave him an IV of anti-anxiety drug, and anti-nausea medication. This got him into a relaxed state of mind, and after 45 minutes of chemo, he ate a snickers bar while watching Cash Cab on TV. After an hour he took a nap, and slept through most of the rest of the treatment.

He slept solidly on the way home, and woke up long enough to get into the house and onto the couch. He slept on the couch until his sister Tanya came over at about 8 (hi, Tanya!), and then went back to sleep until about 10. Then he had some popcorn, watched TV, and went to bed.

So far, so good. He has several medications he has to take at various times over the next few days, but so far it’s not as bad as we were thinking. Of course, things will change as his body is subjected to more treatments, and after he loses his hair, and after he has had his immune system challenged for a while. Only time will tell how he reacts over the next few days, but I’m hopeful, and Brian is in good spirits.

I’ll post again soon, but right now I have to go cut up little pieces of cheese to hide his pills in.

Another one bites the dust

One more round of chemo is done! Now, we just have to get Brian through the next week of side effects. So far, so good. As I write this, it’s nearly 7:00 p.m. on Wednesday night, and Brian is already more alert than he was after the last round of chemo. He stayed awake through the entire treatment, and he only took cat naps on the way home and after he got to the couch, which is an improvement on the three solid days of sleep he experienced last time.

With the extra week of rest he had due to his low white blood cell count, he was in good spirits and was feeling good today when we arrived at the hospital.

Second verse, same as the first...

This time, I came prepared with the tools to try to help him get ahead of the mouth sores he experienced on Saturday and Sunday after his last chemo session. Thanks to the help of Google and the amazing people who commented on this blog previously (thanks, everyone!), I came prepared with the following potential solutions:

  • He sucked on ice chips during almost the entire infusion, and the nurses seemed to think there was enough anecdotal evidence to support that this might help him come the weekend.
  • I bought him Manuka honey, and when we got home, I had him hold a spoon full in his mouth to get ahead of the sores. I’ll repeat this again tomorrow morning and afternoon.
  • We refilled his Maylox-Benadryl-Lidocane mouth wash prescription so that if the sores do show up, he won’t have to wait for me to fill the prescription to get relief.
  • I bought him the following ingredients for a smoothie:

organic pear juice
frozen sliced banana
organic berries strawberries
green supplement powder
maca powder
flax oil
The Herbalist Renew-U Tonic
The Herbalist Rasayana Rejuvenating Tonic

I brought all of the supplement ingredients with me to the doctor’s office so they could review them and ensure that they wouldn’t cause any adverse reaction with the medications he is on. They cleared them all for use, so I will start giving him the smoothie tomorrow.

Let’s keep our fingers crossed that the combination of all these things will make the mouth sores less intense and shorter this time!

It’s almost 7, so I’m going to sign off to watch “Storm Chasers” on the Discovery Channel. It’s October, which means I’m more storm-obsessed than any other time of year. For those of you who are interested, shoot me an email and I’ll fill you in on the weather stats we observed from my weather station during the storm earlier in the week. I’ll spare the rest of you from these details. =)

Spooky Things to Come?

Hi folks! Stine here. Brian went to bed before blogging, and tossed me the keys to the blog again.

Because we had our Halloween party last weekend, it feels like the holiday is over. This whole week has seemed like super-bonus -Halloween-week, because it’s my favorite holiday. That means fun spooky things are definitely to come this weekend as we gear up for trick-or-treaters and the “Running Scared 5K” to benefit the Leukemia and Lymphoma society.

It also means that more seriously spooky things may be ahead as Brian progresses after Wednesday’s chemo treatment. So far, so good; he has just had the anticipated fatigue and easily-controlled nausea/unsettled stomach. As we get into Friday, Saturday and Sunday, we hope that his mouth sores won’t make a major appearance, and his general achey-ness will stay away.

However, in order to avoid a delay in the next chemo treatment like we had last week, they have put him on a medication that will boost his white blood cell count.

I want to take a moment to state how impressed I am with modern medical technology. It is amazing that we, as humans, can recognize, diagnose, and treat cancer, and that we have treatments to ease the side-effects of the treatments. I never cease to be amazed by human ingenuity and expanding medical knowledge. Things that would have killed us just a few years ago are no longer a death sentence, and the treatments are always improving. To those in the medical field – thanks for doing what you do!

As I was saying before that tangent, he will be on a new medication starting tomorrow to boost his white blood cells. Unfortunately, this medication needs to be injected just below the skin, and it causes “bone aches”. We aren’t quite sure what that means, but I guess we’ll find out after we head to the clinic tomorrow to learn how to do the daily injections ourselves at home. I’m glad I decided to accent the red tile in the bathroom instead of ripping it out, because now our “sharp needle receptacle” box will blend right in!

Should I put white trim around it?See? Blends right in!

One more down, one less to go!

Stine here. Brian is resting comfortably after chemo yesterday, and it was pretty uneventful. Well, it was certainly a little silly.

Because Brian has been experiencing some “anticipatory nausea” when he thinks about getting in the car and driving to the hospital, he has been taking a relaxant medication before we leave the house. This medicine made him a little silly by the time he started chemo, and it had him in a pretty good mood when the nurse came around with a bag full of wigs that patients can have. He sampled the wares:

This is his "come hither" look.

He looks good as a blond.

Needless to say, when I showed him this picture later in the evening, he had forgotten it was ever taken. =)

I am so thankful for his amazing sense of humor, and amazing optimism while being poked and prodded. Even when he’s receiving treatment, he keeps the nurses laughing and everyone around him smiling.

For example, somehow today we got into a conversation with our nurse about the “Chemotherapy and You” book, and how it contains a chapter on how to tell your children you have cancer, but not a chapter for how a twenty-something-year-old should tell their parents.

Nurse: “It must have been really difficult to tell your parents when you found out you were sick.”
Brian: “Yeah, it was pretty hard.”
Nurse: “It must be hard for them to not be able to do anything but watch you get treatment. Because you know a mother would cut off her arms for her children.”
Brian: “That’s why my mom only has one arm.”

I guess you kinda had to be there. Trust me, it was funny at the time. He says lots of funny stuff like that, all the time.

In September when he was diagnosed, he was worried that he wouldn’t be a “good” cancer patient, with a sunny outlook.  I don’t think he has to worry about that anymore.

Anyway, my point is, that Brian is handling this like a champ, and it keeps things in perspective for me when I’m dealing with a hard time at work, or get stuck in traffic. He’s the best thing that has ever happened to me, and I’m so glad that he will be around to celebrate the rest of our lives together because of exactly the treatment he went through today. Modern medical technology is amazing, but I’m sure his charming personality has a lot to do with his treatment, too. =)

The waiting is the hardest part

Stine here. Brian had chemo yesterday, and he spent the evening resting on the couch, and going to bed early.

For the record, those are two of my favorite things to do. Sometimes when Brian has chemo, for the few days afterward, it’s like he’s taking an interest in my hobbies. Resting and napping. But I digress.

He’s doing just fine after treatment, and I’m sure that once he starts to feel better early next week he will be glad that one more chemo session is behind him.

I’m having a hard time being patient. I keep telling him that in just a few short months he will be done, and in just a few short months, we will get on with our lives. But with days like today, and watching Brian sit through chemo, I keep getting impatient. I want to make him feel better RIGHT NOW, but there is nothing to do but wait.

I feel like a kid before Christmas morning when I think about what awaits us in the future when he’s better again, but we have a long night ahead of us before we get to the good stuff.

Maybe my focus on the future is the reason I am suffering from a serious case of spring fever right now. I could only wait until January 3 to pull out the gardening books, and I’ve been watching those very appealing “visit Hawaii” commercials very closely. I keep daydreaming about warmer weather, longer days, sun, and a healthy Brian to enjoy it all with.

While we wait for Brian to revisit the blog (read: wake up from his nap), let’s all enjoy a moment of Aloha, and focus on getting to the bright warm future. =)