The LLS, or How I Knew I Picked the Right Cancer For Me

Two days after learning that I had cancer I saw this commercial on TV (and I actually haven’t seen it since).

I’m pretty much in love with Tina Fey and I was stoked to learn that she was a spokesperson for the Leukemia and Lymphoma Society (LLS).

About a week later I was reminded that I had in fact already encountered the LLS before. In March of 2008 I participated in The Big Climb. It was something that my father-in-law and brother-in-law wanted to do so I signed up with them. The Big Climb is a yearly event at the Columbia Tower in downtown Seattle and its a timed race up the stairs of the tallest building in Seattle (the weekend before is always host to the firefighters competition who do the 69 flights of stairs in full gear!)

What’s funny is that The Big Climb is the only benefit/race/competition thingy that I have EVER done since “Jump Rope for Heart” back in grade school (anyone?) and to remember that The Big Climb benefited the LLS seemed pretty ironic to me (though I am probably using that word in the incorrect Alanis Morissette way). I really had a good time at the event I remember being really impacted by all of the teams of people there to support a loved one impacted by Leukemia or Lymphoma. In fact while I was waiting for my timed results to be posted (I beat both my father-in-law and my then 18 year old brother-in-law BTW!) I actually did the cheek swab test and had myself added to the National Bone Marrow Donor Registry. Though now that I actually have one of the blood cancers I should probably call and take myself off the list =)

Anyway, between my forgotten history with the LLS and now the new Tina Fey connection, I was pretty sure from the start that I had been diagnosed with the right cancer for me!

I tell you that story to tell you this: On the morning of Halloween, Sunday October 31st at Seward Park in Seattle is the Running Scared 5K, benefiting the local chapter of the Leukemia & Lymphoma Society. We are putting a group together to participate and I wanted to open it up to anyone who wants to join us.

It should be a fun morning, and it looks likes it’s a pretty small event as far as these things can go. There are costume contests (for people and dogs) and the event itself is a run/walk. It’s at a great time for me in my chemo cycle so I will get to participate and will be walking for anyone who wants to walk along with me or who may not be excited about running 3.1 miles.

So if you want to join us on the morning of Halloween please let me know directly or you can leave a comment below (remember you can just type in your name to leave a comment, you don’t have to include your email address and stuff) and I will be sure get your contact info to my sister, Tanya, who is coordinating the team. It’s a $25 entry fee, but if you sign up with us you’ll get $5 discount as our team is already larger than 10.

Let us know if you are interested! It’s for a great cause and it’s a great way to hang out for a bit and get some exercise!

Another False Alarm

I already had today’s post written. It was all about how I didn’t want to go chemo today because I felt really good (in fact this is the best I’ve felt in months). Then at about 4:40 in the afternoon on Tuesday I got a phone call from the doctor’s office letting me know that they did not want me to come in for chemo. I had gotten what I wanted, but suddenly I wasn’t happy about it.

I had gone in on Tuesday morning to have what will become a standard day-before-chemo blood draw, and the results indicated that my white blood cell count has not recovered enough for me to undergo another treatment this week. The nurse that I spoke to didn’t seem to think that this was something to be overly concerned about, it doesn’t indicate anything and it’s a common side effect of chemotherapy. My doctor just wants to wait another week and give those numbers a chance to get higher before we start up again. She also indicated that with this knowledge they may be prescribing some additional medications to help boost my white blood cell counts after the next treatment, now (tentatively, I guess) scheduled for next Wednesday.

This is actually really frustrating. I spent the whole day thinking about how I REALLY did not want to go back in for chemo, but now that it’s a reality I just wish that I was going in. I mean, let’s get this show on the road! Every day I’m not being treated is another day that I’m not getting better. Please note that this sentiment is now the exact opposite of the original draft where I spent several hundred words complaining about how I did not want to go in for my second dose of chemo today. Be careful what you wish for, I guess.

The biggest bummer is that this will push us onto a new two week schedule. Looking forward, the original every two week schedule seemed to fit well with a number of events that we already had on the calendar. Most notably the upcoming holidays. Thanksgiving and Christmas both fell on what was looking to be “a good week” for me. But if I now have chemo next week and then everything is based on that two week cycle it now pushes them onto “a bad week.” Oh well. One thing I’ve clearly learned is not to count on anything, it can all change so very fast!

Next to Normal

Today (Wednesday) was such a normal day that I almost forgot to blog before going to bed. For the last few weeks I’ve had cancer related updates and new things to share every day, but today was just a day. And to be honest, I feel perfectly healthy and I didn’t really think about cancer much today. The first draft of yesterday’s blog post (written before I knew that I wasn’t going in for chemo this week) had a big section about how great I feel, and how I didn’t want to back in for chemo because I haven’t felt this good in months. I had been told that this would happen, that after I emerge from my first dose of chemo all of my symptoms would disappear and I would feel great. It’s exactly what happened, and I had pretty much made up my mind that I didn’t need to go back and that I was cured, though I had doubts that my oncologist or my wife were going to buy it.

But still, a very normal day today. It felt like September 12th all over again (the day before my first doctor’s appointment). I got up at about 8:30 and spent the morning applying the second coat of paint to the bathroom. Then in the afternoon I took care of some errands and took the dog for a long walk before starting some house cleaning. I have energy and I have been able to accomplish things again. It’s almost enough to make me forget entirely. Like it never happened! I need to remember to enjoy this while it lasts.

I think Christine had a rough day though. As far as she was concerned it was her “Friday” all day on Tuesday. I had chemo scheduled for Wednesday and she wasn’t planning on coming back into work for the rest of the week. So it was Friday, right up until 4:45 when I called her and let her know that they had canceled my appointment. Suddenly it was Tuesday again, that has got to be a rough adjustment to make.

A special thanks goes out to all of Christine’s co-workers who have agreed to help to cover for her while she is out of the office every other week, for half the week. Especially now, when our schedule has changed and now all of the days that she needs coverage on will be shifting (and thanks in advance if and when it shifts again).

In the meantime, I’m working on getting my white blood cell count back up. I don’t really know how to do that… but I sure think about it alot. I concentrate really hard and imagine a new white blood cell just popping into existence and joining his white blood cell friends for a joy ride through my blood stream. I’m pretty sure that’s not how it works, but I like to think that it helps.

Few More Days to Sign Up

Still a few more days to sign up to join us at the Running Scared 5K (or Walking Confidently 5K as I hope to do). My sister is hoping to register the team tomorrow (Saturday) so if you still want to join us please comment below or email me and I’ll get you in touch with her. I think she said we have about 25 people joining us next Sunday on Halloween at 9am. It’s in Seattle at Seward Park, why not join us?

The proceeds benefit the Leukemia & Lymphoma Society which has donated over $680 million to blood cancer research since it’s inception in 1954. Organizations like THIS are the reason that I have a treatable and curable cancer. Organizations like THIS are responsible for the medical breakthroughs that are saving my life. It’s a $20 entry fee with all proceeds going to cure cancer.

One caveat though, due to the change in my chemo schedule it’s now unclear how much of the 5K I’ll actually be able to walk next week as it will now be only a few days after my next chemo treatment, rather than the full week and half that it was going to be. Regardless I’m still planning on walking it, just a little slower now, and maybe not the whole thing… There is no time limit though, so maybe I’ll just “camp here, and make for the summit in the morning.” I’m certainly no threat to my last, and only, official 5K time when we did the Black Diamond Triathlon last year and I medal-ed in the team relay with Ryan and Sage.

So yeah, think about joining us if you can. It should be a lovely walk (or run if you wish) near the shores of Lake Washington. And thanks to everyone who has already signed up to join us, it should be a fun morning!

“The Blood”

I had a chance to see the results of the blood test which kept me from chemo last Wednesday. Whereas a normal person has a white blood cell count (WBC) in the 4.0 – 10.7 K/ul (I think that’s thousands per unit maybe?) range, mine came back at an underwhelming 1.5.

I can see all of my blood test results online so I went back and looked at the results from previous CBC/PLT/DIFF’s that I’ve had just to give since I was curious to see how those numbers have changed. My first doctor’s appointment back on September 13 had my WBC count at 13.7 which is actually high. I don’t know if it’s related, but this would be back when my symptoms were pretty acute and I was consistently running a temperature in low 100’s most of the time. Two weeks later, in anticipation of my first chemo treatment and chest port installation (which still hasn’t happened), I had another blood draw and my WBC count was back down to 10.7, just on the high end of the normal range. But then my first chemotherapy treatment came along and wiped them out… all of them.

This is one of the reasons why people going through chemotherapy are so prone to infection. Christine is much better at freaking out and worrying about this much more than I am. She’s admitted to pretty much becoming a germ-a-phobe lately, as she convinced that she’s going bring something home that I’m going to catch and that will kill me. She’s taken to leaving the house armed with disinfectant hand sanitizers and wipes, and has become an obsessive hand washer. It’s like the Swine-Flu scare all over again. Admittedly, I haven’t been so great about changing my habits in that respect, and I’m pretty sure that it’s slowly driving her insane. But I don’t really leave the house as much as I used to so as far as I’m concerned, I’m more likely to catch something from the dog (fleas, rabies, a tapeworm) than I am from the outside world. Still, 1.5… if that’s what it was two weeks after my first dose of chemo, I shutter to think about how low it actually got. What’s worse is that Christine might be right to be so concerned.

I go in again this morning for another pre-chemo blood draw before tomorrow’s re-scheduled treatment. Here’s hoping that my WBC count has come back up enough so that I can have chemotherapy tomorrow and we can send those numbers crashing back down. What an odd thing to wish for.